Monday, January 6, 2020
Many of you may not be aware that The Coleridge Medical Centre is a member of the South West Clinical Research network (https://www.nihr.ac.uk/nihr-in-your-area/south-west-peninsula/). In medicine, we are constantly striving to find the most effective treatments for common conditions and research is a key factor that helps to provide this knowledge. As a practice, we take great care to select studies that we feel will help us treat our patients better. We feel it is a great opportunity for you as patients to take part in studies that directly benefit you and improve treatment in primary care. From time to time, you may be invited to take part in one of these studies. There is no obligation to take part and, if you decline, it will not affect your treatment in any way.
This project is inviting people who experience symptoms of a common condition known as Irritable Bowel Syndrome (IBS) to join an IBS Research Register. Symptoms of IBS include constipation, diarrhoea (or both), stomach discomfort and bloating. The organisers hope that IBS research will help them to better understand the condition as well as develop and assess new treatments. The register would hold the contact information of adults interested in hearing about and taking part in future IBS research. People who register would be matched to any relevant research as it becomes available and would be contacted to see if they would like to take part in a study. The organisers would not share their information with other research teams or organisations, and individuals are free to remove their details from the register at any time. More information is available online at: https://www.contactme-ibs.co.uk/ or from leaflets available in our waiting area/foyer.
This study is assessing an electronic support for families and friends of individuals affected by psychosis. The online resource called COPe-Support provides peer support, information on psychosis and ways for carers to look after themselves.
The study hopes to find out if COPe-Support can help to improve carers’ wellbeing and how well they cope with caring.
It is open to carers who support a loved one affected by psychosis – they may be parents, partners, siblings or other relatives or close friends.
If you are interested in taking part, you can access more information online via www.cope-support.org. The study will close for recruitment on 14 February 2020.
Patient views on taking part in research
Every year, we conduct a postal survey of all our patients who have joined a research study through this Practice. Below is a selection of comments made by some of our survey respondents (August 2019) about their views on the benefits of getting involved in their research study:
“I know I have arthritis but it was good to know that I do not have rheumatoid arthritis"
“It couldn't have been done better. The person I saw who explained it all was excellent”
“It was less work than I expected”
“Encouraged me to find out about arthritis and pay attention to my general health”
“I am willing to take part in any relevant research projects … I feel it is important to take part in these studies for the benefit of those who need treatment in years to come”
“Reassurance that research is being carried out looking at the after care of post cancer treatment patients”
“The study website carried some useful info online”
“Just glad to be involved and help wherever I can”
“A wellbeing and confidence that these studies are looking to improve things”
“Cancer requires as much research as possible. I have no objection providing anything that can be of use”
Improving Clinical Care in Diabetes Study
“I am always pleased to contribute to medical research”
“This was the first study I did, so I am hoping it will help me and others to cope with our conditions”
“All very good”
“It's great to have the opportunity to take part in research”
“I am sure it will be extremely useful for future patients in years to come”
Tuesday, December 31, 2019
The Pisces Study has now closed for recruitment (as of 31 December 2019). The study recruited young adults (age 18 to 45 years) who were experiencing ongoing back pain. Participants gave the study team permission to collect relevant follow up information from their health records, and filled in a short questionnaire about their back pain symptoms. Sixteen patients from the Practice have been involved in the research - thank you to all who took part.
Tuesday, December 17, 2019
The Early Arthritis Study has now closed for recruitment. We recruited 84 patients in total – thank you to everyone who has taken part. Any participants who joined the study during 2019 will be followed up by post and should receive a brief study questionnaire about 12 months after they had their study blood test.
Tuesday, October 1, 2019
Research Online Magazine - Frontier South West
The National Institute for Health Research bi-annual publication FRONTIER magazine for the South West is now available for you to read, with information and stories from across the region.
Participating in research takes many forms and this issue has stories showing how patients, members of the public and organisations can get involved in high quality research that changes lives.
In this issue:
- Taking part in a clinical trial was the “luckiest day of my life”
- Cornish man hopes to improve mental health treatments in the future by taking part in clinical research
- Regular crosswords and number puzzles linked to sharper brain in later life
- Somerset family take part in research looking to prevent lives lost to Type 1 diabetes
- Strides in local mental health research recognised nationally
- Taking part in health research comes highly recommended by patients in South West, survey shows
- Become a Patient Research Ambassador